Irelyn's busy week!!!!!

Sorry for the late posting. We have had a busy week! Irelyn had her follow up appointment with the surgery clinic on Tuesday with Dr. Snyder. This was a waste of time! We were literally in the room with the surgeon for like 4 minutes total!!!! I couldn't believe it. Oh well that is okay I guess! Then she had OT on Wednesday and Thursday. On Wednesday Irelyn did fantastic with her exercises on the ball. She was having tummy time to help improve her neck and head strength. The therapist couldn't believe how great she did! She did her exercises for about 20 minutes and then the OT offered her a bottle. Well that didn't go well. She was absolutely exhausted and wouldn't take one cc. We hooked up her tube feeding and decided to call it a day. Dad was able to take her to her OT Thursday while mom had a doctor appointment of her own. They decided to offer her a bottle BEFORE exercising and apparently that helped out some. However, Irelyn still was only able to take 6 cc's before tiring out and then was switched to the g-tube for completion. And finally to end our week today, she had an ultrasound done on her hips just to make sure everything looks okay. We are trying to learn all that we can each day about the syndrome and the things that go along with it. These kids are at risk for developing hip dysplasia and that is why her pediatrician wanted a baseline ultrasound done. Of course we don't know the results. We pray to God that it will be normal.

This is how most of our weeks will be for awhile to be certain we give Irelyn all the treatments and therapies that she needs to in order to do the best she can do in life! In light of this Jeremy and I have decided that I will not be returning to work full-time. Instead I am going to try and work one night a week in the ER on Jeremy's nights that he is home. We will see how this goes. Those who know me well know why I say that. :0)